Another Loss: Long-time owner gets OK to demo 2 blighted buildings in downtown Harrisburg

HARB last night gave permission to raze these two buildings in downtown Harrisburg.

Another slice of historic Harrisburg seems fated for the wrecking ball, as a long-time property owner has received permission to raze two small downtown buildings.

By a 4-1 count, the Harrisburg Architectural Review Board (HARB) last night voted to allow retired area attorney Gilbert Petrina to demolish 512 and 514 N. 2nd St., a commercial building and an apartment building, respectively, that he has owned for at least 35 years.

Petrina’s son, Gilbert Petrina Jr., attended the meeting, saying that his father, who is in his 80s, was too ill to attend.

The younger Petrina told the board that he and his father wished to tear down the buildings, following receipt of a city condemnation notice for the long-vacant properties.

“My goal is to get these down as quickly as possible,” Petrina said. “They’re a blight. They’re a hazard.”

Several board members pointed out that the properties were blighted only because they had been neglected for so long by the owner.

“I’m disappointed the properties have reached this point,” said member Jeremiah Chamberlin. “Ten years ago, they would have been restorable.”

Chamberlin, who lives nearby, pointed out that, over the years, several people had tried to buy the buildings in order to save them, but Petrina was not responsive to those overtures.

“I don’t know why my dad held onto them,” the younger Petrina said.

Indeed, the buildings are in terrible shape, with broken windows, boarded-up back ends and a distinct lean.

Attorney Jeffrey Clark, who owns the building next door, said he fears the buildings could collapse, damaging his property.

“The building is a complete blight,” he said of 512 N. 2nd St., a late 19th-century, two-story, 1,500-square-foot commercial building. “It’s a fire hazard, it’s a safety hazard, and it’s an aesthetic nightmare.”

The second property, a three-story, circa-1920 apartment building, larger at about 2,000 square feet, seems to be in slightly better condition.

Petrina said that, someday, he’d like to build a new structure on the site. Until then, he proposed using the lots for parking and said that he already had interest from the Pennsylvania AFL-CIO, which occupies the historic Gannett Fleming building on the opposite corner. He said he hoped that parking revenue would help offset the cost of the demolition.

That proposal led to pushback from both residents and the city.

Several members of the neighborhood group, Capitol Area Neighbors, were in attendance, and they objected to any proposal for another surface parking lot.

“When we get more temporary parking, people get used to it and keep it as temporary parking,” said member Kathy Speaker MacNett. “I don’t want more property to become parking.”

Assistant city Solicitor Tiffanie Baldock said the city could not allow additional commercial parking in that area anyway because doing so would violate its agreement with Park Harrisburg/SP+, which runs the parking system under a long-term lease with the city.

“From the city’s position, a temporary parking lot would not be possible,” she said.

Nonetheless, Petrina, who lives in Virginia, said he still would proceed with the demolition and reiterated that, someday, he hoped to build on the site, though he lacks a plan to do so. He said that he wanted to start demolition as quickly as possible and told his engineer, who attended the meeting, to solicit bids.

“I just need it down flat, and we can go forward from there,” he said.

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Take 2: HBG mayor issues CDBG veto, council to reconsider allocation

Habitat for Humanity and TriCounty HDC, which together sponsored a “building blitz” last week on Allison Hill, are proposed recipients of CDBG funds this year. Photo: Diane McNaughton.

For the second time in his administration, Harrisburg Mayor Eric Papenfuse has vetoed City Council’s allocation of federal housing grants.

Papenfuse overturned a bill disbursing $2 million in grants to more than a dozen nonprofit organizations and city programs. The source of the money was the Community and Development Block Grant (CDBG), a program from the federal Department of Housing and Urban Development.

Papenfuse today said his veto was due to council’s decision to award a $15,000 grant to Breaking the Chainz, a mentorship program that works with at-risk youth. Council granted the organization money even though it submitted an incomplete grant application.

Fifteen organizations applied for funding this year, according to Dave Madsen, chairman of council’s Community and Economic Development Committee. Last week, council passed a bill awarding grants ranging from $5,000 to $320,000 to 13 of those applicants, including Breaking the Chainz.

The city’s Department of Community and Economic Development screens and ranks grant applications according to a formal system every year. They did not recommend Breaking the Chainz for any funding. Even though the program met CDBG eligibility guidelines, its incomplete application meant that it ranked below other eligible organizations.

But council voted last week to reduce a proposed grant to TLC Work Based Training from $45,000 to $30,000, freeing up $15,000 for Breaking the Chainz.

Some council members expressed concern about veering from the ranking system, but the amended bill passed 4-3.

Papenfuse said the decision took money away from a deserving applicant and set bad precedent by breaking with the accepted grant-screening procedures.

“Their actions raise questions of fairness and transparency,” he said. “We have gone out of our way to establish an independent and trustworthy scoring process.”

Papenfuse has used his veto power once before, when he overturned CDBG allocations in 2016.

On Monday, Madsen said that both TLC and Breaking the Chainz provided valuable services in helping to keep residents out of the criminal justice system. TLC provides workplace training for formerly incarcerated people entering the workforce, while Breaking the Chainz reaches at-risk youth through mentoring, he said.

“Something we’re currently struggling with in the city is a high population that ends up in the criminal justice system,” Madsen said. “We wanted to do a full-court press in addressing the issue.”

Council is set to vote on a veto override at a legislative session tomorrow, according to a meeting agenda. But Madsen said that council members don’t plan to award any money to Breaking the Chainz anyway.

In the week since council passed its CDBG funding bill, Madsen learned that the organization may have trouble fulfilling administrative requirements tied to the federal funds.

Barring any last-minute amendments from council members, the body will likely revert back to the allocations recommended by the city Department of Community and Economic Development.

According to city Solicitor Neil Grover, council doesn’t have to override the mayor’s veto – it could simply vote to amend the bill it passed last week.

If the override vote does not pass, the entire CDBG bill dies, Grover said. Council members would have to introduce a new bill and publicly advertise it before voting to allocate funds.

Council adjourns for summer recess after its July 3 legislative session. But Madsen said that the break won’t start until council finishes its CDBG business.

“We have to get this done before we go anywhere to meet federal requirements,” he said.

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TheBurg Podcast: “From Boom to Gloom” Edition.

TheBurg Podcast is back after a short hiatus! The Harrisburg news cycle has kept us busy in the past few weeks, but we’re breaking down the most important developments in the city in our newest episode.

We start by discussing the city’s so-called “fiscal crisis” and then recap a chaotic school board meeting. We wrap up on a more hopeful topic – the groundbreaking of the new federal courthouse at 6th and Reily Streets, which took place earlier this week.

You can stream the episode here, or subscribe to TheBurg Podcast in the Apple or Android podcast apps.

Read more about the topics covered in this podcast at TheBurgNews.com:

Harrisburg imposes austerity measures, hopes for legislative action as it faces hard realities of Act 47.
Mayor’s communication on Act 47 “irresponsible,” HBG councilman says, as 14 jobs affected by hiring freeze.
“I’m done:” School board members threaten walk out, exchange barbs over spontaneous action on superintendent contract.
Mandate or Suggestion? State calls on Harrisburg school district to seek new financial managers
Speeches & Shovels: After years of delays, officials break ground for new federal courthouse in Harrisburg.
Burg Blog: The “Right” Stuff.
Harristown to purchase, renovate historic property that once housed iconic Harrisburg hotel, restaurant.
Facing ouster by PennDOT, newsstand owner fights for his right to stay in the Harrisburg train station.
Following public outcry, PennDOT rethinks plan that would oust train station newsstand.

TheBurg Podcast is released semi-monthly by TheBurg Magazine. It is recorded in the offices of Startup Harrisburg and produced by Lizzy Hardison. Special thanks to Paul Cooley, who wrote our theme music.

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Line Men (and Women): Thousands brave the heat to meet Super Bowl MVP Nick Foles

A small portion of the long line of people waiting to get into Midtown Scholar Bookstore to meet Nick Foles.

They came to Harrisburg from throughout central PA: Annville, Manheim, Perry County. Every borough and township on the West Shore seemed to be well represented.

One guy said he drove up from Washington, D.C.; another came down from upstate New York.

These passionate Philadelphia Eagles fans were here to see the Super Bowl MVP, their personal football hero, Nick Foles.

“I wouldn’t miss this, no way,” said Ben Adams, a self-described “Eagles nut” from the Mechanicsburg area. “I’ve been waiting all my life for the Eagles to win the Super Bowl.”

Foles, though, wasn’t in Harrisburg just to say “hi” to a few fans. He stopped into Midtown Scholar Bookstore to sign and sell copies of his new autobiography, “Believe It: My Journey of Success, Failure and Overcoming the Odds.” All comers had to have a ticket, a $30 brush with fame, long sold out.

Foles settled into his chair at about 2 p.m. and basically didn’t move for the next 2 ½ hours, a blur of happy faces passing before him.

Outside, people couldn’t believe the extent of the line, which ran down Verbeke Street then made a sharp right onto N. 2nd, extending as far as the eye could see. Up and down the line, a few freelance businessmen hawked chilled bottles of water from a cooler, as fans sweated copiously on the first day of an extended summer heat wave.

“Oh, it’s damn hot,” said Claudia Evans, wearing an Eagles jersey that looked better suited for a cool, damp November day. “But it’s worth it.”

On N. 3rd Street, at the exit side of the store, folks tightly gripped their freshly signed copies of “Believe It.” One man mentioned that he was disappointed that Foles wouldn’t sign his jersey, while a young woman commented on the surreal, fleeting moment of meeting her favorite football player.

“It all happened so fast,” said Megan Burillo. “You walked in, and he was there, and then you were gone.”

For a post-signing reward, some fans trickled across the street to the Broad Street Market, where Adam Brackbill, owner of Urban Churn ice cream, seemed a bit overwhelmed by the sudden demand for his frozen treats.

“I’m selling out pretty fast,” said Brackbill, as he scooped up dish after dish. “If I had known about this, I would have prepared.”

Back outside, Bill Akers and a few pals had a long walk back to a downtown parking garage. Asked if he planned to read the book, Akers, who had trucked in from the Philadelphia suburbs, seemed non-committal.

“I can’t say I’m much of a reader,” he said. “I really just wanted to meet the guy. And now we’ll go out and have some fun.”

Pictured above: Nick Foles signs books inside Midtown Scholar Bookstore.

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Taste of Freedom: Harrisburg sets riverfront food truck fest, fireworks for July 4

Last year’s “Taste of Independence” Food Truck Festival brought in 35,000 attendees to Harrisburg’s riverfront.

Even with the forthcoming heatwave, Mayor Eric Papenfuse predicts the festival will pull in even more guests.

“I am excited and very hopeful that we are going to break that 35,000-people record from last year,” Papenfuse said. “It will be an extraordinary day and an extraordinary event.”

Next week’s festival on July 4 will feature more than 40 food trucks including Soul Burrito, The Potato Coop, Brazil on Wheels, Mad Sandwiches and more.

New this year is a “foodies map and guide,” which lists all food vendors and their items as well as a map outlining where the trucks will be located.

“[The guide] allows you, from the comfort of your own home, to plan how you are going to attack this festival,” Papenfuse said.

For music lovers, Maudlin Moon, Strangest Hearts, D-BO, Nearly York, Alex Allegra and Keith Goldstein will perform on the Market Street Stage and on the acoustic music stage in Kunkel Plaza

The Children’s Festival will include glitter tattoos, caricatures, lawn games and activities. Superheros and princesses will meet and pose for pictures, and children can create their own hero masks for $5.

Also new to the festival is an outdoor film screening presented by Midtown Cinema. Following the fireworks, there will be a showing of “Moana” between Market and Walnut streets. The wayfinding princess will pose for pictures during the screening, as well.

“I’m really excited this year about the children’s festival activities,” Papenfuse said. “There will be lawn games and activities and all sorts of things for children.”

The fireworks produced by ZY Pyrotechnics will begin around 9:15 p.m. and feature a 15-minute show of over 1,000 shells launched from City Island.

Street parking on July 4 will be free. For $5, guests can park at City Island, and there will be $10 parking in the Market Square Garage from 10 a.m. to 10 p.m. Cyclists can drop their bikes off at Recycle Bicycle, which will then check bike brakes and air pressure while attendees roam the festival.

“As you can see it’s going to be an incredible day this July 4,” Papenfuse said. “I’m hoping everyone will come and join us at the Riverfront this Wednesday and, even after, stick around for that movie under the stars. It’s going to be a wonderful day celebrating the Taste of Independence Food Truck Festival.”

The Taste of Independence Food Truck Festival is July 4, 3 to 9 p.m. at Harrisburg’s Riverfront Park between North and Market streets. For more information of the festival and to get your foodies guide, visit harrisburgpa.gov/july4th.

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Music on the Mountain: Tuning up for the Susquehanna Folk Festival.

Rory Block

Shane Speal was rushing to fix a broken string on his cigar box guitar in between sets at a recent concert when I sat down with him to get the lowdown on the upcoming Susquehanna Folk Festival.

“I can’t believe we’re going to be part of that fest,” said the York-based blues singer. “The more I look at the lineup, the more I wish I could clone myself so I can attend every show and workshop.”

He laughed at the thought as he wound a guitar string around an instrument cobbled from a cigar box and broomstick.

Speal is known as the “King of the Cigar Box Guitar” and fronts the jug band, Shane Speal & the Snakes. He has also become the unofficial spokesman for the Susquehanna Folk Fest, a two-day event in late July at Roundtop Mountain Resort, featuring dozens of musical acts and workshops.

Q: You’ve played a lot of festivals around here. What’s so different about the Susquehanna Folk Fest?

Speal: I’ve never seen one with so much diversity. I’ll be honest, when I think of folk music, my mind goes to Bob Dylan, Woody Guthrie—you know, somebody strumming a guitar and singing revolution. However, these organizers, the Susquehanna Folk Music Society people, are hardcore fans of all kinds of folk music. They’ve booked blues icons, Celtic legends, African dancers and everything in between.

 

Q: Which blues icons?

Speal: David Bromberg and Rory Block will be there. I’ve done shows with Rory before, and she’s the real deal. She learned to play slide guitar at the feet of Son House, the guy who taught Robert Johnson how to play. And Bromberg is a fingerpicking monster who learned from Rev. Gary Davis.

 

Q: Bromberg also had some hits in the ‘70s.

Speal: Yeah, and played with everyone from George Harrison, Bob Dylan to a host of others. He’s an absolute legend. There’s going to be a Q&A workshop with him before his Sunday evening set that I’ll be attending.

Q: Is that part of the workshops you mentioned?

Speal: Yes, and Rory Block is giving a slide guitar workshop before her Saturday evening set. Unfortunately for me, I’ll be performing with my band on another stage at that time. I should see if they can move my stage time so I can learn to play like her [laughs].


Q:
What are your personal picks for this fest?

Speal: Oh wow, let me see. There’s going to be an emerging artist competition on Saturday. I’ve played shows with many of the acts in there such as The Wild Hymns and Indian Summer Jars. All top notch. Don’t miss Olds & the Absolution in that one. Olds Sleeper is one of my favorite songwriters out there. He writes like John Prine and plays a mean guitar.

There’s going to be a jug band workshop by Slim Harrison and the Sunnyland Band on Saturday. I think that one’s for kids, but I’ll probably attend it anyway because I play in a jug band and maybe I can steal some ideas.

Q: So, there are things for kids to do?

Speal: Yeah, they thought of everything with this fest. Kids stuff, concerts, crafts. It’s like a two-day cultural explosion [laughs].

Q: What other shows will you go to?

Speal: The Quebe Sisters will be there both days, so I’ll probably catch at least one of their shows. They do that classic country swing music where they sing rich harmonies around one microphone. They’re fantastic fiddlers, too. I’m a big Hank Williams, Sr., fan, and they’re version of “Cold Cold Heart” gives me chills.

Q: Country swing at a folk festival?

Speal: And swing dance lessons, too! They’re bringing in a dance instructor from Victrola Swing Dance Club in York to teach people how to swing dance.


Q:
Will you be dancing?

Speal: Oh, god, no. I once took swing dance lessons, but I failed miserably. You don’t want to see Shane Speal dance. Trust me.

Hold on. Let me look at the schedule on my phone because I know I’m missing a bunch of acts. There’s so much good acoustic music here. The Irish band, Trian features Daithi Sproule on guitar. He was one of the original innovators of Celtic DADGAD guitar. I think he’s doing a workshop, too. David Holt and Josh Goforth are an incredible duo that do a lot with old-time instruments and even hambone knee-slapping.


Q:
Any other recommendations?

Speal: There’s so much. There’s a few jam sessions happening throughout the weekend, so I’ll probably stick my head in there for at least one. There’s gonna be bluegrass, blues and other styles, but I’d like to sit in with the Irish session because I love that music and never get to play it.


Q:
People can bring their own guitars and instruments?

Speal: Hell, they’re encouraged to bring them. The Ski Roundtop people will have a secure instrument check-in area, too. That way, you can walk around without lugging your guitar the entire time. Quite honestly, some of the greatest magic will probably happen on the hillside as musicians start their own jam sessions.

Q: What about your concert at the festival? What can we expect?

Speal: Just imagine Motorhead as a jug band [laughs]. Expect our wild show of cigar box guitars, washtub bass, homemade drums and more, but we’re also pulling out some of our storytelling folky stuff.


The Susquehanna Folk Festival will be held July 28 to 29 at Roundtop Mountain Resort, Lewisberry. For tickets and information visit
www.susquehannafolkfestival.org.

 

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Beer Frontier: On Allison Hill, three men are on track to open PA’s first black-owned craft brewery.

Burg in Focus: Harris Family Brewery from GK Visual on Vimeo.

Shaun Harris was watching TV in his Harrisburg home when he caught an episode of “Moonshiners,” a show about illegal whiskey production in the Appalachian Mountains. As he witnessed scofflaws in rural Virginia distill liquor from giant drums of hog feed, Harris thought to himself, “You can do that?”

As it turns out, you can’t. A quick Google search told Harris that brewing liquor in America is illegal without a license. Brewing beer, on the other hand, is fair game. Harris promptly bought a simple home-brewing kit, made his first batch of beer and “was immediately blown away.”

Harris roped his friends JT Thomas and Tim White into joining him for a daylong home-brew session. They brought one of their first kegs to a summer barbeque, where they offered it to a dozen friends with a disclaimer—they didn’t know how it would taste.

“Six gallons were gone in like, 20 minutes,” said Thomas. “People had one and wanted another and another and another.”

Harris describes that barbeque as a light-bulb moment. He didn’t know yet what craft beer was, but he did know that the ingredients and production that went into his keg didn’t cost much.

“Where we’re from, you try to monetize everything—it’s called being a hustler,” Harris said. “We thought, we can do something here.”

That was four years ago. Since then, Harris, White and Thomas started making beer as the Harris Family Brewery, and they just secured a location for a taproom on 13th and Market Streets, in South Allison Hill. They still need to obtain a brewer’s license and retrofit the empty space with brewing equipment and seating, but they’re hoping to sell the first beers over their 10-seat bar in early 2019.

When it opens, Harris Family Brewery will be the first craft brewery in Allison Hill and likely the first black-owned brewery in Pennsylvania. Harris hopes that the business will inject new life into its neighborhood and broaden Harrisburg’s craft beer scene beyond its downtown and Midtown epicenter.

Shaun Harris, Tim White and JT Thomas.


Untapped Potential

The guys at Harris Family Brewing don’t just see their new business venture as a way to do what they love—it’s also an opportunity to bring a new base of consumers into a lucrative market.

Craft beer sales in the United States topped $26 billion last year and account for 13 percent of the country’s total beer industry. But African Americans, who make up 14 percent of the country’s total population, only consumed 4 percent of its craft beer in 2014, according to a Nielsen study.

Mike Potter is the editor of Black Brew Culture, a Pittsburgh-based online magazine dedicated to advancing African Americans in the craft beer industry. Potter said that people of color haven’t traditionally been exposed to craft beer, in part because the industry hasn’t invested in marketing to minority customers.

Craft beer consumption among blacks is on the rise, but Potter said that fewer people of color enter the industry as brewers and brewery owners.

“We’re getting to a point where there are more and more of people of color in craft beer, but they’re not getting the same amount of exposure due to lack of resources,” Potter said. “We’re playing a bit of catch up.”

Since national brewer associations don’t track the demographics of brewery owners, Black Brew Culture keeps its own tally. Potter estimates that people of color own roughly 50 of the country’s 2,800 craft breweries, and he’s certain that Harris Family Brewery will be the first in Pennsylvania.

Harris says he’s used to being one of the only black people at craft beer tastings and breweries. To him, that’s not a problem so much as a sign of untapped potential. Shortly after they brewed their first successful batch of beer, White pointed out to Harris that they would have a niche market for their product.

“I thought, ‘You’re telling me that we have a whole market that doesn’t know there’s a product out there that is this big?’” Harris said. “I say, ‘Let’s open that market up.’”

To that end, their brewery location will be key. Though the brewers initially had their eyes set on property in Steelton, serendipity led them to their spot above a laundromat at 13th and Market. It’s snug, but Harris said they hope to open “a nano-brewery in the truest sense,” meaning that all of the small-batch beer they produce will be sold on site. The space is just big enough to accommodate their current home-brew set up and a 10-seat bar. They don’t plan to serve any food, but do anticipate a busy carryout business once they start selling bottles and cans.

Harris Family Brewing will start small, but its proprietors are already charting plans for growth. They’ll start with an off-site canning facility once the taproom on Market Street takes off. They then hope to distribute their beer across the state and grow their presence through festivals and industry expos. They’ve already sampled their beers during Harrisburg Beer Week and also held a pop-up tasting in Strawberry Square with local event organizer and promoter Sara Bozich.

They’ll also bring kegs to Steelton Community Day on July 23 and will hit the road for the Aug. 11 FreshFest, a black brewing festival in Pittsburgh hosted by Black Brew Culture.

Strangest Industry
If you already own a brewery in Harrisburg, it could be easy to see a new one as competition. But that’s not the case for Brandalynn Armstrong, co-owner of Zeroday Brewing Co. on Reily Street. Armstrong, who’s also on the board of the PA Brewers Association, thinks that expanding the craft beer market into a new neighborhood can only help Harrisburg’s existing breweries.

“Bridging neighborhoods is incredibly important, as long as it’s done through responsible development,” Armstrong said. “And what better way than using craft beer to link our neighborhoods together?”

She and Harris also think that each individual brewery in the city benefits from customers having more options. Harris hopes that Harris Family Brewery will introduce many of its customers to craft beer, encouraging them to “expand their palates” and try other beers in the city.

Harris, who works full-time in corporate IT when he’s not brewing beer, called craft beer “the strangest industry you ever saw—it’s more like kids on a playground than corporate America.”

He’s been shocked by his company’s warm welcome into the local brewers’ network, which he described as more collaborative than cutthroat. Harris Family and Zeroday recently held a joint brew day to develop a collaboration beer, which they’ll debut on July 3 during a screening of “Poured in PA,” a documentary about the statewide craft beer industry.

Harris, White and Thompson learned to brew by watching YouTube videos and have honed their craft through trial and error. They developed some of their favorite recipes through pure experimentation, like when they made a Christmas stout (which they dubbed “Black Santa”) by fermenting the ingredients for fruitcake—currants, raisins, sour cherries and ginger spice.

Now that they’ve secured seed funding for their site and begun renovations, the trio is focused on perfecting their recipes and setting a menu for the taproom. Since they’re playing the long game, they’re already thinking about potential businesses that they could spawn by bringing craft beer to a new neighborhood and customer base.

“In five or six years, I want to look back and say, ‘We blew the scene up,’” Harris said.

Potter agreed that Harris Family could inspire other people of color to pursue careers in brewing or brewery ownership.

“I think it’ll be a huge blueprint for brewers across the country trying to get into the game,” Potter said. “Being the first is a big deal.”

For more information Harris Family Brewery, visit www.harrisfamilybrewery.info or the Facebook page.

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A Loss, a Purpose: Hershey woman advocates for greater newborn screening laws.

Lesa and Brennan Brackbill with Tori. Image by Katie Bingaman Photography

Lesa and Brennan Brackbill of Hershey have endured something no parents should—the death of a child.

Their daughter Victoria (“Tori”), born in July 2014, passed away on Easter Sunday 2016, 14 months after being diagnosed with a severe neurological condition called Krabbe (“crab-ay”) disease. Even though Tori’s time on earth was short—fewer than two years—her mother Lesa is determined to create a lasting legacy by advocating for changes to Pennsylvania’s newborn screening laws that could have prevented Tori’s death.

 

Even So, Joy

One in every 100,000 people is diagnosed with Krabbe. One in 125 people carry a gene mutation for Krabbe. Carriers only pass the disease to children when both parents carry the mutation.

Unbeknownst to Lesa and Brennan until Tori’s diagnosis at Hershey Medical Center, they are both carriers. According to the NIH, if Krabbe is caught at birth through newborn screening tests, it can be treated. If the disease is allowed to progress, children rarely survive past the age of 2. These statistics roll off Lesa’s tongue easily. She says that, before this experience, she had no medical knowledge, nor did she consider herself a writer.

“Unfortunately, we aren’t going to be the only ones to ever lose a child, or lose a child to Krabbe,” she said. “So, we felt like we owed it to people to write about how to survive the worst loss.”

Her book, “Even So, Joy,” was published earlier this year and chronicles her family’s experience with Krabbe.

“The first months after diagnosis, we were in a daze, and we grieved the most as we struggled with what the diagnosis meant,” she said. “But then we came to the decision that we weren’t going to cry every day and make her life miserable. We were going to choose to be joyful and make her life as full of joy as possible. That’s where the title comes from.”

Lesa cites the legacy of Milton S. Hershey as one of her greatest sources of inspiration. Her husband, Brennan, is employed by Hershey, and she has worked at The Hershey Story. The couple serves as relief house parents for the Milton Hershey School.

“When we first learned about the school and why it was created, we learned that Mr. and Mrs. Hershey couldn’t have children of their own and, instead of wallowing in that, they used it to start a school,” Lesa said. “Sometimes, you’re put into a situation to act for the greater good. It’s inspiration for us to further Tori’s legacy by making a difference.”

She is donating a portion of the book proceeds to Hunter’s Hope, a foundation established by NFL Hall of Famer Jim Kelly and his wife Jill, whose son Hunter also had Krabbe. The foundation is dedicated to awareness of the disease, support for families like the Brackbills, research and advocacy. According to Hunter’s Hope, only five states currently screen all newborn babies for Krabbe.

 

Like a Victory

Currently, Pennsylvania hospitals are mandated to screen for nine dried blood spot conditions—tested by a simple heel prick—all paid by state funding. However, the technology exists to test for additional diseases. So, some Pennsylvania hospitals test for as many as 32 conditions with hospitals or insurance absorbing the additional cost.

“Hershey is the only hospital that screens for Krabbe in the state,” Lesa said. “In Pennsylvania, if you have one of these diseases, your zip code literally determines life or death. The inconsistency is mind-blowing. My goal has been to change this. The average [number of diseases on newborn screening panels] is usually in the 40s for other states.”

Rep. Angel Cruz (D-Philadelphia), Democratic chair of the House Human Services Committee, has become a champion for newborn screening laws. He introduced Act 148, named “Hannah’s Law,” for a Philadelphia-area girl diagnosed with Krabbe in 2013. Hannah’s Law, signed by Gov. Tom Corbett in 2014, called for the expansion of the state’s mandatory newborn screening list, including Krabbe.

However, according to Cruz’s staffers, the legislation has yet to be enacted due to two key issues. First, it mistakenly bypassed the Newborn Screening and Follow-Up Technical Advisory Board (TAB), mainly comprised of state medical experts who provide guidance and recommendations to the state Department of Health. And, secondly, implementation requires a funding source.

“What really needs to happen is creation of a dedicated funding source that would not need to be part of the budget process that would fund the program every year,” said Rachel Romanofsky, research analyst for the Human Services Committee.

House Bill 1081, introduced by Cruz in April 2017, would impose a fee on “birthing facilities,” paid to the state for every baby’s screening tests, including those identified under Hannah’s Law, as well as future tests recommended by the TAB. Romanofsky says 47 states already have such a fee system in place.

At the latest TAB meeting, held in Harrisburg in May, some of the state’s brightest medical minds discussed funding and advocacy. That’s because Department of Health officials say the program needs $6 to 7 million to launch.

“The [newborn screening] program is in a difficult position,” said Chairman Jerry Vockley, a physician at Children’s Hospital of Pittsburgh. “There are things we are mandated to do but cannot [due to lack of funding].”

Despite the continued delays, Lesa is positive.

“Today was encouraging because it’s no longer a matter of whether or not the advisory board feels that screening for Krabbe has merit, but rather a matter of how to pay for it and for any other diseases that may come along in the future,” she said. “That validates our fight and feels like a victory.”

While the fate of newborn screening in Pennsylvania remains cloudy, the Brackbill family recently announced happy news. Lesa gave birth to twin baby boys on April 24—and they are both Krabbe-free and healthy.

To learn more, visit www.HuntersHope.org. Lesa Brackbill’s book “Even So, Joy” is available through Amazon.

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No Money, Big Problems: Newspapers don’t need more readers. They need cold, hard cash.

Illustration by Rich Hauck.

“What are you doing about readership?”

Recently, I spoke at the annual meeting of the Harrisburg chapter of the League of Women Voters, a great group of people who asked me to share my thoughts on the future of our fair city.

During a Q&A afterwards, one gentleman asked me that question, one I’ve heard countless times before. It comes in various forms, but can be summarized thusly: “How are you managing to survive the collapse of the newspaper industry?”

People have read the stories. They know that journalism is in a world of hurt. However, I find that they often don’t quite understand the problem.

It’s not readership.

TheBurg’s print run has doubled over the past five years, and we probably could double it again and still find a reader for every copy in our six-county distribution area. There are a few locations I refer to as “black holes”—places where I could throw Burgs in all day long, and they’d disappear just as fast.

People love our print edition—yes, even phone-distracted youth. But our digital readership is also way up, doubling in just the past year.

So readers? TheBurg has no problem finding readers. In fact, I’d venture to say that most local newspapers, when you combine print and digital formats, have more readers than ever before.

So then what’s the problem?

The problem, in a word, is this: money.

The newspaper industry has become impoverished. The ad-based revenue model has broken down, which I’ll now attempt to explain as simply as I can. But please bear with me. There’s a lot to unpack here.

First, when you talk about newspapers, you have to make distinctions. You can’t compare TheBurg to, say, the Wall Street Journal.

Each “property” has its own story, but I would say that there are three big buckets: a few national newspapers (New York Times, Washington Post, the Journal), a ton of chain-owned legacy papers (locally, the Patriot-News/PennLive, York Daily Record, Lebanon Daily News) and a smattering of independently owned papers (locally, LNP, the Sun, the Press and Journal).

In general, the middle category—the old, chain-owned papers—is in the worst shape, and, when we discuss the failing newspaper industry, that’s often what we’re talking about.

Historically, nearly all newspapers shared one main business model: advertising. Sure, a newspaper company might make some money elsewhere (subscriptions, outside printing, events), but the bulk came from classified and display print ads. By the 1970s, most U.S. cities were one-newspaper towns, and the lucky survivor often was wildly profitable. Newsrooms were stacked with reporters, editors and designers; papers were thick with ads, stories, columns, puzzles and comics.

Then came the internet.

Beginning in the late 1990s, print newspapers faced a new technology—the digital distribution and consumption of news—and they didn’t know what to do.

Now, no one can predict the future, so I don’t want to seem too harsh on these chain-owned legacy papers. I realize that they’ve been trying to survive in a time when Google and Facebook vacuum up the ad dollars that used to be spent with the local paper.

However, 20 years of hindsight shows that, as they responded, they made a cascading series of blunders—killing their own highly profitable newspapers by posting the same content online for free; swapping high-margin print advertising for (very) low-margin online advertising; angering long-loyal print subscribers; degrading their own product; embracing the worst practices and gimmicks of online news.

On top of this, many newspapers lost local control. The distantly located corporate parent, which long had allowed their properties to operate mostly independently, began to impose top-down solutions, limiting the papers’ ability to respond tactically to the local market.

Now, contrast this situation with the other two “buckets.” The few national newspapers are doing pretty well. They stumbled around awhile before finding their footing again, experimenting with new products and instituting online subscription models (aka paywalls).

Locally owned newspapers—the third bucket—fall somewhere in the middle. Some are doing reasonably well, others less so. The most successful ones have stayed close to their communities and didn’t lose their heads, doing their best to integrate the new digital format into their existing print model.

I’m happy to report that TheBurg is faring well—and not just in terms of readership. I would credit that to maintaining focus, retaining quality and remaining deeply embedded within our community. I think we share these traits with most hyper-local papers that have shown growth during these profoundly difficult times. In addition, we control our own fate, which means that we’re able to make the best decisions for ourselves in our local market.

Having said that—we’re not immune from the existential crisis facing the industry. So, if you like TheBurg, I hope you’ll encourage a company or organization you’re affiliated with to support us as a community partner. There’s nothing I’d like more than to add a few reporters, so that we could give this community the depth and quality of coverage that it needs and deserves.

As an individual, you also might think twice before sending your money to Silicon Valley and Seattle (i.e. Google, Facebook and Amazon). Advertise locally. Shop locally.

Lastly, you can support us by visiting our website (www.theburgnews.com) and signing up for TheBurg Daily. That way, we’ll continue to grow our online numbers. Meanwhile, you’ll benefit by receiving direct links to our original reporting, the news we break nearly every day, apart from the monthly magazine.

Despite what I said above, TheBurg truly can never have enough readers.

Lawrance Binda is editor-in-chief of TheBurg.

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Hooray for Harrisburg: Filmmaker Adrian Selkowitz brings a touch of Tinseltown to the banks of the Susquehanna.

Adrian Selkowitz. Photo by Anela Bence Selkowitz

Harrisburg boasts a number of highly talented people who could be living practically anywhere but have intentionally chosen the city as their home.

Cue city resident Adrian Selkowitz, an Emmy-award winning filmmaker, with close to 20 years of experience in film and television.

Okay, so how did he end up here? Like his résumé, it’s an interesting story.  

 

Really Lovely

Back in 2001, Selkowitz graduated from NYU’s film school with a solid foundation in indie filmmaking. To gain experience with big-budget, studio films, he headed to the West Coast to try his chops in Hollywood.

After working in the development office at Sony Pictures, he took a job with the producer Barry Poltermann, who helped him learn the business of large-scale indie filmmaking. Together, they produced “The Life of Reilly,” about the actor Charles Nelson Reilly.

Eventually, Selkowitz created his first feature film, “Sex Drugs Guns,” which went on to win “Best Feature Film” at the Philadelphia Independent Film Festival and to be acquired there.

As it was for many, the Great Recession proved a crystallizing time. Selkowitz described a confluence of factors, including an absence of paying projects and a general burnout on Hollywood.

About then, he attended a film writers’ panel where each panelist shared a piece of advice for the audience. One recommended leaving Los Angeles.

“He said, ‘If you’re going to be a writer or creator, there are no stories here to tell that aren’t Hollywood,’” Selkowitz recounted. “That really resonated with me.”

Not long after, Selkowitz and his wife Anela (a professional photographer and wardrobe production expert) decided to move to the East Coast to hit reset for a bit.

When asked if they intentionally landed in Harrisburg, he chuckled.

“This is up for debate,” he said. “After school, I told my roommates, ‘I’m going out to L.A. for two years. I’ll be back. Keep my spot.’”

He grinned.

“Ten years later, we moved back toward New York, but we stopped in Harrisburg because my family is here,” he said.

The couple discovered that they really liked Harrisburg. Selkowitz cited the open space and people as just two of the selling points.

“It was really lovely,” he said. “We were kind of taken with it. And it’s still a growing town, so there’s an opportunity to really contribute—to do what we want, and the impact is really felt. We love that.”

So, he said, they decided to stay for a while.

“And a little while turned into a long while, and we’ve been here for eight years now,” he said. “And we have no plans on leaving.”

 

A Better Place

But what about the burgeoning film career?

Back on the East Coast, Selkowitz and some of his buddies from film school started a production company called Cowboy Bear Ninja (if the name confounds you, just Google it), with the principles of being honest and telling meaningful stories for their clients. While Selkowitz lives here, the company is headquartered in Manhattan.

The first opportunity they were offered was a project for a hydrofracking company.

“It would’ve been a ton of money, but we said no because it didn’t align with our beliefs,” he said. “We were super broke, but then, a month later, Greenpeace called.”

Cowboy Bear Ninja has since made branded content and short films for a variety of non-governmental organizations and agencies for social good, including the U.N. Foundation. Gradually, as their experience broadened, they expanded into entertainment, but vowed to continue to be guided by their values.

“How can our work make the world a better place?” Selkowitz said. “And how can we contribute through media or television?”

“Liquid Science” is one such endeavor, a show that explores a range of scientific topics, including global warming, virtual reality and the quest for immortality. Selkowitz managed to snag the show’s host, GZA (of Wu-Tang Clan fame), whom he enticed to hop on board, knowing his reputation as a literal genius and lover of science.

“It was kismet,” he recounted. “We found someone who’s genuinely interested in the subject matter.”

Another example—a recent project with truTV and their collaborator, Michael Torpey, which developed into a show called “Paid off with Michael Torpey.” The show uses humor and a game show format to bring attention to the egregious student loan crisis. Comedy, coupled with social good.



People Around You

While much of the company’s work is filmed in other cities or at multiple locations across the country, Selkowitz has pointedly shot several projects in Harrisburg. Among these are six episodes of a show called “Blank Meets Blank.”

“I love bringing production here,” he said. “We have really wonderful people to work with here.”

Also, a film means jobs.

“When you shoot something somewhere, you eat there, you hire people there, it brings work,” he said. “And it’s good work, it’s paying work. And it’s fun.”

To that end, UPMC Pinnacle, Theatre Harrisburg, the Capital Area Greenbelt, friends’ houses and the Susquehanna River have all made appearances in Cowboy Bear Ninja productions. Plus, the city and surrounding area, he explained, can double as pretty much anywhere on the East Coast.

Looking ahead, Selkowitz talked about creating his own scripted series and just being a good parent.

“I understand that it takes complete focus and dedication and long hours to become really, really successful in an industry,” he said. “But I don’t want that to come at the sacrifice of getting to experience all the moments of my son’s childhood.”

He credited his wife with helping him appreciate that life is a journey to be appreciated, rather than one measured in discrete achievements.

Is he surprised by his own affection for Harrisburg?

“I never in a million years thought I would settle here,” he said. “But after you’ve lived enough places, you realize that everywhere you go is basically the same. It’s all about the people you have around you. Some of the nicest people I’ve had the opportunity to meet and know live here.”

For more information on Cowboy Bear Ninja, visit www.cowboybearninja.com.

“Paid Off with Michael Torpey” begins airing on truTV at 10 p.m. on July 10. “Liquid Science” is available to stream on Netflix, and “Blank Meets Blank” is available on truTV’s “Late Night Snack.”

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